As with any baby born with a serious medical condition, there will be frequent medical visits for Severe Combined Immune Deficiency (SCID), which can involve many tests and procedures. The process can be very stressful to the entire family. Parents must remember that maintaining their own physical and emotional health is very important, especially while their child is going through treatment. It will be important to identify sources of support and strength, possibly from other family members, close friends, healthcare professionals and spiritual leaders. The demands on the time and energies of the parents can be overwhelming. We know one of the best sources of support comes from other parents who have traveled this path and can offer first hand encouragement and support gained by their own experience. It is a good idea to ask your healthcare team if they could introduce you to others who are going through the same experience.
